tag:blogger.com,1999:blog-4646919877092626924.post8658026715179882887..comments2023-05-22T04:49:05.919-04:00Comments on Sunny Day: This and ThatJenhttp://www.blogger.com/profile/05535881273481381348noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-4646919877092626924.post-61400891008891363922009-01-17T21:16:00.000-05:002009-01-17T21:16:00.000-05:00Fragile X is such an important issue - thank you f...Fragile X is such an important issue - thank you for bringing attention to it.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4646919877092626924.post-13805572373704329692009-01-14T12:17:00.000-05:002009-01-14T12:17:00.000-05:00I love that song You are My Sunshine, too! I have...I love that song You are My Sunshine, too! I have the title on my Italian charm bracelet. :)Betsy Brockhttps://www.blogger.com/profile/06807795605763246015noreply@blogger.comtag:blogger.com,1999:blog-4646919877092626924.post-14891059053511658302009-01-13T22:33:00.000-05:002009-01-13T22:33:00.000-05:00Yeah, I agree Umma. When Evan was younger, he sha...Yeah, I agree Umma. When Evan was younger, he shaked his head, and it was very appropriate. At ten months old, he liked to watch Dora the Explorer, and he would shake his head "no" when Dora would ask a question! <BR/>I usually try to do something to get Evan's attention when he's doing his humming/shaking head. He has also started turning in circles and thinks it's funny when we say, "Spin, spin, spin." <BR/>Kyle was my big spinner. He loved that type of motion. When he was younger, he would go on a NASCAR ride at the fair that would whip him around the corners. We would end up laughing at how hard he was laughing!<BR/>Matt's never been big on motion. He's our "cautious" child.Jenhttps://www.blogger.com/profile/05535881273481381348noreply@blogger.comtag:blogger.com,1999:blog-4646919877092626924.post-75729167630709705002009-01-13T11:11:00.000-05:002009-01-13T11:11:00.000-05:00I've seen non-FX kids do the head shaking thing to...I've seen non-FX kids do the head shaking thing too. My niece did it as a baby. I think the difference is that sometimes our kids get "stuck" on an activity that is totally normal which then, of course, makes it not normal. <BR/><BR/>We turned the head shaking into a game. When Monkey would start with the head shaking I would get on his level and chant "No, no, no, no, no?" and smile. He started using it as a way to engage me in play eventually. Now he only does it when he wants to play...he'll wrap his arms around my neck and get nose-to-nose with me and we'll play the head shaking game for a minute or so before he moves on.<BR/><BR/>I suspect it is sensory based, it's a bit disorienting to me when I do it. It's as bad as spinning in a circle, which Monkey also loves. He amps up the sensory input by turning on the ceiling fan and spinning under it while looking up. That makes me sick to my stomach in seconds but he can do it for up to 30 seconds at a time. He's definitely a sensory "seeker" vs. a sensory "avoider."<BR/><BR/>"You are my Sunshine" is a major favorite with Monkey too...it's just such a sweet and appropriate song if you only sing that one verse, lol. I heard the entire version on the "O Brother Where Art Thou" soundtrack and was surprised there was more to the song!Ummahttps://www.blogger.com/profile/13971352599912799411noreply@blogger.comtag:blogger.com,1999:blog-4646919877092626924.post-51030060183481808082009-01-12T03:26:00.000-05:002009-01-12T03:26:00.000-05:00Holly does the head shaking thing too when she is ...Holly does the head shaking thing too when she is really loopy, needs a nap, or bedtime, ect.. and sometimes when she is full and I am feeding her and she wants no more food. She shakes her head really fast.. is that an FXS Thing? A Sensory Thing? I don't know if she is humming.. I haven't paid that close attention..<BR/><BR/>I have a "Holly is a little fish" song with a whole long story that we used to sing almost every night.. sadly it is a rare occasion when i sing it now, but i think I will start up again.. it makes me all teary eyed to think of her as a teeny tiny baby and rocking and singing it to her now that she is all grown up (10 months) lolAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4646919877092626924.post-84777850614227228902009-01-11T16:44:00.000-05:002009-01-11T16:44:00.000-05:00Sarah, I was really impressed when you said that y...Sarah, I was really impressed when you said that you signed that song...thanks for clarifying that! :) Really, though, that song probably wouldn't be too difficult to learn.<BR/>~~<BR/>Sarah and FXSmom, the Sunshine song--there were many times when I would end up with tears in my eyes while singing that.<BR/>~~<BR/>Yes, Laura, I agree! It's amazing how we forget the pain of childbirth, or at least I know I did. I remember thinking each time, "Man, how did I forget how much this really hurts!?" I mean, I know it hurts, but I can't recreate that pain in my mind.Jenhttps://www.blogger.com/profile/05535881273481381348noreply@blogger.comtag:blogger.com,1999:blog-4646919877092626924.post-75670480917184258342009-01-11T16:27:00.000-05:002009-01-11T16:27:00.000-05:00Well, Chelsey, that's what you are! (for 8 1/2 mor...Well, Chelsey, that's what you are! (for 8 1/2 more months...ugh...you're making me old!)Jenhttps://www.blogger.com/profile/05535881273481381348noreply@blogger.comtag:blogger.com,1999:blog-4646919877092626924.post-33064574390014034982009-01-11T15:56:00.000-05:002009-01-11T15:56:00.000-05:00Teen??;)Teen??<BR/>;)Chelseyhttps://www.blogger.com/profile/03373643334923709146noreply@blogger.comtag:blogger.com,1999:blog-4646919877092626924.post-58865960124478602882009-01-11T12:37:00.000-05:002009-01-11T12:37:00.000-05:00I love the title of your blog, and the backstory. ...I love the title of your blog, and the backstory. My theory on milestones: g-d deletes child rearing from our minds so that we forget the hardships and hence want to procreate again. How else can you explain how the memories of the first three months post-partum become a blur and then vanish?Laurahttps://www.blogger.com/profile/07764022300747217993noreply@blogger.comtag:blogger.com,1999:blog-4646919877092626924.post-61054048211201777042009-01-11T10:46:00.000-05:002009-01-11T10:46:00.000-05:00That song was the only thing that would get Rachel...That song was the only thing that would get Rachel to sleep for YEARS!! Matty's was Amazing Grace. <BR/><BR/>I also follow my teen daughter around the web. I have a myspace mainly cuz she is there.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4646919877092626924.post-81606033392446627862009-01-11T00:57:00.001-05:002009-01-11T00:57:00.001-05:00Oops - I mean "sign" not "sign" - though maybe it ...Oops - I mean "sign" not "sign" - though maybe it would be cool if I learned the signs to go with "You are my sunshine". : )SThttps://www.blogger.com/profile/17991027507602019139noreply@blogger.comtag:blogger.com,1999:blog-4646919877092626924.post-36402208850031702022009-01-11T00:57:00.000-05:002009-01-11T00:57:00.000-05:00I sign "you are my sunshine" to Quinn, too! We've...I sign "you are my sunshine" to Quinn, too! We've definitely got hand flapping and crib jumping over here. No humming though. Yet.SThttps://www.blogger.com/profile/17991027507602019139noreply@blogger.comtag:blogger.com,1999:blog-4646919877092626924.post-51248063443081286802009-01-10T23:26:00.000-05:002009-01-10T23:26:00.000-05:00Wow. It has been too long. I remember those song...Wow. It has been too long. I remember those songs. :)Chelseyhttps://www.blogger.com/profile/03373643334923709146noreply@blogger.comtag:blogger.com,1999:blog-4646919877092626924.post-52560990426346430992009-01-10T21:29:00.000-05:002009-01-10T21:29:00.000-05:00Tanks for commenting. I really appreciate you pra...Tanks for commenting. I really appreciate you praying for my friend....more than you know. I enjoyed reading about your family too. I always am amazed at how other children, affected with FXS and autism, are so similar to my own.Loriehttps://www.blogger.com/profile/14071258218355465718noreply@blogger.com